Thursday, February 22, 2007

Just another update: There is still nothing new to report. I did write an email to my doctor, who has been on vacation through this whole "stand by" situation. Nonetheless, that is what I am doing. I have had a bit of relapse on the retail therapy front, but luckily, I have been working so I haven't done much damage. I have been trying to organize my space so that at least one space in my life is uncluttered. As it turns out, more things have ended up with labels than truly organized. I still have difficulty sleeping, but I have a new class for reading so I am hoping that will do it. I am deflated about school and the DLP- I still haven't heard whether or not I have/not been admitted but I have a bad feeling and I haven't yet come up with a practical plan B. So blue is my color right now, even though the shoes I bought were pink (and very cute).
More later... send positive thoughts my way and keep me in your prayers. (thanks)

Friday, February 16, 2007

IMPORTANT SURVEY INFO. WE'VE BEEN WAITING FOR....
U.S. Public Is Taking Action to Support Organ Donation, Gallup Survey Finds
February 15, 2007
HHS's Health Resources and Services Administration (HRSA) today announced the results of a 2005 Gallup Organization survey which indicates that Americans continue to strongly support the donation of organs and tissues for transplantation. More importantly, the survey also finds that far higher percentages of Americans have taken personal actions to become organ donors since a similar 1993 survey on donation.
The percentage of individuals who have granted permission to donate their organs or tissues on a driver's license or an organ donor card reached 53 percent in 2005, almost double the 28 percent who had done so in 1993. HRSA Administrator Elizabeth Duke urges anyone interested in becoming an organ donor to learn how at OrganDonor.gov. HRSA directs federal efforts to promote donation.

Nearly all of the survey respondents – 97 percent – said they would donate a family member's organs if they knew the person's wishes ahead of time. The 2005 survey reported that 71 percent of Americans had talked to a family member about their donation wishes, up from 52 percent in 1993.
"Make sure you tell your relatives about your intention to donate once you sign up. Sharing your intentions with family members is an important part of the donation process," Duke added.
Gallup also found that among U.S. racial and ethnic groups, Whites (61 percent) in 2005 were most likely to indicate donation on their driver's license, followed by Latinos and Asians (both at 39 percent), and Blacks (31 percent).
"The results of this survey show that more Americans than ever are aware of the importance of organ donation and are taking action," stated Duke. "But we must do more, particularly in minority communities where support for donation is weaker. I encourage more families to discuss this issue, because their decision to donate in a time of grief can bring hope and life to many others."
The Gallup Organization's 2005 National Survey of Organ and Tissue Donation Attitudes and Behaviors queried over 2,000 Americans concerning their attitudes toward donation of organs and tissues for transplantation. The study replicates the 1993 survey and includes new items as well. For more information on how you can become an organ donor and more detail on the Gallup survey results, visit www.organdonor.gov/survey2005.
The Health Resources and Services Administration (HRSA), part of the U.S. Department of Health and Human Services, is the primary federal agency for improving access to health care services for people who are uninsured, isolated or medically vulnerable. HRSA also oversees a national organ and tissue transplantation system. For more information about HRSA, visit www.hrsa.gov.

Thursday, February 15, 2007

Sorry for the delay in posting, I know that many of you have called today looking for updates...
Well, 5am came, then 7am, both passing without a call or word on my status. At 9am I called the doctor (my doctor is on vacation for 2 weeks), to find out some word.
"Oh...I don't know. I haven't heard from the oprgan bank. I don't know if the organ is available yet, if they passed you over or what. I'll let you know when I hear something." It is now 3:30 and I have been trying to nap or watch the Family Feud in order to distract. Basically, unless, I am told otherwise, am still on standby. But I am planning to work tomorrow and my mom is going home and just operate normally. It is a huge stressor and a bit of a let down after such an adrenaline rush. When I have spoken today, I think they are also frustrated that I don't know. I just don't know. In any case, you will know when I do.
-Jill

Wednesday, February 14, 2007

Hello Everybody. I hope that you are enjoying your Valentine's Day and National Donor Day. I have some news...I got a call from the Brigham at about 8pm this evening telling me that they have a very good pancreas that's about to become available. I am number 2, so they wanted me to be ready. The next step is to WAIT for another phone call, possibly around 5am. It all depends on how the pancreas looks. The anxiety is killing me, but I called Kevin and my dad. My mom is here for a sleep over and to help manage the stress. So more will come...

Thursday, February 01, 2007


Dear Friends,
It is with a great amount of honor and pride that I introduce Mrs. Hillary Stern and Miss Avery Stern, the family of Brett, my kidney donor. I often think of them, and I know many of my blog readers do as well, so now I can share them with you! I have received many inquiries about Avery: you'll be glad to know that she is a beautiful (as you can see), happy 3 and a half year old, busy with swimming, dancing and school! Since Heather has come into my life, I have often thought of Avery and how she was doing, knowing that they are about the same age. Are they doing the same things?
As I discussed with my mom recently, we questioned if the timing was right to check in with the Stern family. Hillary actually contacted me for an update. December 1oth was my 1 year kidney transplant anniversary and I wondered whether or not it was appropriate to contact her around the holidays. Thankfully, she found me! I am grateful to have this connection since so much of my recovery was spent reflecting on the joys and blessings of my life, so far. I have much more living to do!

Gosh! Where has January gone? I have been really focusing on school since this is my last required class! I am not sure whether or not I will walk at Northeastern (Saturday, May 5th), but my attention is already set on my next challenge- the Doctorate in Law and Policy. I have been preparing my personal statement wondering is this too personal? Will my personal statement make me unique or make me look like a drama queen (that I am)? In any event it has helped me get back into the creative process of reflecting and writing.

Still really having insomnia problems...
until next time...

Saturday, January 13, 2007

I haven't posted since before Christmas so I figured I should get down to business. Not that there is a whole lot to report. I have been generally in good health, although holiday food did not sit well with me, nor did the stomach bug I got after New Year's which persisted for almost a week. I went to the Lung Doctors and the Kidney folks and both had few complaints. Though I was a bit dehydrated given the stomach issues. My weight dropped to 120 from the lack of absorption, not that I was complaining. I have been doing a lot of reading and have read four books in a month. Since I have such trouble sleeping, the books have helped me relax although having a bedrrom with no windows, I find that I sleep all day.

So did you make any New Year's resolutions? I did and I am hoping that my friends will help me along the way. First and foremos, my resolution is to get my financial house in order, even if it does mean filing for bankruptcy. You really can't be sick and live the lifestyle to which I was accustomed so I have put action steps in place and mini- baby step objectives to make things more manageable. I have read every online article on MSN money and Oprah's debt diet, and all the tips in Real Simple. My first objective is to stop buying magazines in which 60% of the content is advertising anyway. My next objective was to save all my receipts and my bank statements from 06 and categorize them to see where my money goes. Any guesses? Not shopping for clothes, but to Target, Bull's eye, they've got me. So I have taken to list writing, doing errands in bulk and avoiding the Red Monster. I find that I can ge tthe household stuff I need at Benny's (a Plymouth staple for many generations for household, plumbing, paint and automotive supplies, much less glamorous than Tar-je`. I paid off one looming debt with my holiday money and although that's the last thing we all want to do it has been a huge burden. Lastly, so far, I am taking on a second day at ministorage and although it isn't much we could all use a little extra. I am debating do my taxes myself, because I do anticipate a refund, but then again, I am not the best with numbers and I would hate to make a costly error.
My next resolution is to keep in better contact with friends and family. I now have a land line (listed) in case of emergency and I really need a phone with better reception. I looked up Sprint's user map and it seems that all of Plymouth is the same color for service so maybe it is my cheap phone. I am considering a Treo, but that seems like it would contradict the above so I am torn. I could really use a nap right now.
School has started again and I am taking my last required class, but since I have a credit from last year's kidney transplant semester, I figure I will take an elective after the first 6 week class finishes. I am still involved with the organ bank and I got a standing ovation at Stonehill when I went for my second visit. I think this is one of the reasons I am here on this planet and it makes me feel very proud to spread the word.
In more superficial news, I cut my hair to about chin length because the lack of sufficicent nutrients and the medicine was making my hair dry, brittle and frizzy so I cut it off. No special salon job, just a quickie at Procuts, North Plymouth for life! Alison will once again be in the neighborhood moving into her grandmother's old house. Just like the old days. By the way- she turned 30! this week. Only 6 more months to go...

Saturday, December 23, 2006

Christmas is almost here and I wonder, have I been naughty or nice this year? I think it is important to think not just of the big acts that we do on occasion but the little daily niceties that count out of sincerety just to brighten someone's day.

I have once again received an outpouring of love and support from my friends this holiday season and I love the updates and picture cards. Let me tell you from my experience, posing with a dog, is a lot easier than posing with a 2 year old, and, as cute as Miss Heather is with her imposing blue eyes, it is impossible to make her look anything less than the devil's own, even with the best red eye reduction tools out there. My Christmas card duty was tripled this year, as I wrote Kevin's business cards, my personal cards, and then, at the last minute with few picture options, those for Kevin's family. Both his mother and father are in the hospital this year and Heather continues to have respiratory symptoms. I keep insisting that Kevin take her to the doctor- as many of us have learned the hard way, doctors, as good as they are, are people and it is easy for a pediatrician to be complacent and dismiss a first time father as overly cautious for every sniffle and wheeze. But Heather was like this last year I am told and ended up with pneumonia in the hospital.
Unfortunately, I have made it to few parties this year if any at all, because I have a blob of goo instead of a pancreas that requires bathroom location and privacy factors to consider. I appreciate the invitations nonetheless.
Admittedly, I have been getting more and more anxious about the pancreas transplant as January draws closer and it could be any day now. I haven't written any letters like I did with my lungs, I haven't packed a bag like I did with my kidneys, so I just haven't taken any physical steps to assuage the mental part, unless you count taking pills-of the prescribed but no so drastic kind.

In much happier news, my dearest friend MANDY and her husband TED, also known as the kidney locators, are EXPECTING A BABY in JULY 2007! Certainly, I will have to begin saving now so that I can be out there when she delivers. I figure I pretty much owe her since she drove 6 hours to come for the lung transplant and then flew like 5 hours to bring me the kidney! Although they are unsure of the sex of the child, I told her Jill was a good name, but I think I'll have to kick the bucket before I generate a namesake!

More later....

Saturday, December 09, 2006

Well, it's holiday time again and instead of printing out snip-its of my year in summary, I thought it best to direct people here so they can see the pictures and get a real blow by blow about what life has had in store for me in 2006.

I spent most of January and February recovering from my kidney transplant. I can't begin to thank the family of Brett Stern enough for their sacrifice and truly making LIFE possible this year. With this in the back of my mind I set out to pay homage to my donor Brett and of course, Uncle Bob. My lungs turned 74 this year and are doing quite well. In March, I began dating Kevin and Heather (yes, a package deal) and although things went quickly and weren't without hiccups, they are even better now. I began working at Camelot Self-Storage one day a week to start to be part of the family business. A good, quiet job where I can do my school work. In April, I celebrated my 7th lung transplant anniversary! Yippee! In May, I ended up moving in with Kevin and Heather, helping with bills and babysitting. I parted ways with Carrie, who has since moved back to FL. It's hard to live with friends sometimes and I think we found our expiration date for being roomies. June waas filled with babysitting and July found me with a rubber hose up my nose for sinus surgery. I decided to not take summer classes and to give myself a break. August found me working a whole 45 hours in a row- a feat I hadn't done in years. I was excited I could work, but I really need to recuperate from the marathon so that I could have the work-up for my pancreas. On Sept 7th, I was one of 4 listed at the Brigham and Women's. Also in September my oldest brother Scott got married. Everyone had a blast. Unfortunately, I came down with pneumonia just after and my excessive partying didn't help. In October, I was totally spent up with school and figuring out things with Kevin. It seems we hit a little speed bump. He was working overnights and was miserable. Serious questions came about whether we should stay together or not and which/whose direction we were headed in. Halloween was adorable with Heather as a ladybug and Detroit as a bumble bee. They are quite the pair. I decided to move back to Liberty Street in November to prepare for pre and post transplant- to have a space of my own and give Kevin some space too. It seems to be the remedy because when I went away to Jessica's wedding over Thanksgiving he was amazed by the thought of what life would be like without me. And now here it is in December, waiting...waiting for a pancreas, for snow, for Santa. I've learned to live with waiting and have shared this notion with many of the students and groups I've spoken with. Volunteering and spreading the word of the importance of organ and tissue donation has been main mission this year and I think it has been successful.

So what about next year? WELL<>

I have been blogging somewhat less because although I swore I wouldn't do it, I started a myspace page for a Northeastern Project so...myspace.com/don8life

Seasons Greetings,
Jill Balboni
You Are Strength

You represent both fiery energy and steadfast will.
You are innocent and naive - yet unafraid and undaunted.
Perhaps you don't have the most powerful physical strength...
But your mental powers make up for any amount of muscle.

Your fortune:

Lately, you have been a pillar of ethics and moral strength.
And while things may be difficult, your faith in yourself will come through.
You may need to conquer the animalistic nature of yourself or others, with gentle force.
Although this may seem like the darkest hour for you, victory is near.

Sunday, November 26, 2006








Happy Thanksgiving- belated. I am here in Florida, back in Tampa and with Kelli Belfabulous. Jessica's wedding was terrific, with surprise fireworks and all! She was a lovely bride and I met some great people that I know I will keep in touch with. Check out some photos.

Tuesday, November 21, 2006

Your Elf Name Is...

Spicy Mc Mini
Your Elf Name Is...

Spicy Mc Mini
Your Five Variable Love Profile
Propensity for Monogamy:
Your propensity for monogamy is medium.In general, you prefer to have only one love interest.But it's hard for you to stay devoted for too long!There's too much eye candy to keep you from wandering.
Experience Level:
Your experience level is high.You've loved, lost, and loved again.You have had a wide range of love experiences.And when the real thing comes along, you know it!
Dominance:
Your dominance is high.It's your way or the highway when it comes to love.You like to be very involved in your sweetie's life.No question, you like to be the one calling the shots.
Cynicism:
Your cynicism is low.You are an eternal optimist when it comes to love and romance.No matter how many times you've been hurt - you're never bitter.You believe in one true love, your perfect soulmate.And if you haven't found true love yet, you know you will soon.
Independence:
Your independence is medium.In relationships, you need both "me time" and "we time."You usually find it easy to be part of a couple.But occasionally you start to feel a little smothered.
You Have Fantastic Karma
You are a kind, sensitive, and giving person.And all your good deeds will pay off - if they haven't already.But you're not so concerned with what you get in return anyway.You have an innate caring nature - and nothing can change that!
Here I am in in Sunny, but not warm, Tampa. currently, Kelli and I are in her doctor's office with a complaint of a right upper quadrant pain. Being the medical docotor I am I examined her and ran through a gammut of questions to get at the heart of the problem. I guess I should could go back to medical school because I have come up blac\nk. She also has a symmetrical circle shaped black and blue which I have determined to be a bruise- she is worried it may be a clot. All of her blood work is normal so we will await the results . Her blog is linked to my myspace page myspace.com/don8life under my friends list as Kelli bel-fabulous. I realy thought my myspace site would attract more teens, but I had no idea how many older college buds would have pages. I haven't written since I have been moving, finishing up my class, getting ready for one more before graduation and working. I needed a stress free vacation and although I think there will be some stress, I think the change of scenery is needed for me. I'm going to meeting up with old friends like David, Lisa, and Jessica's Family. More later...
-Jill

Saturday, November 04, 2006



Happy Halloween... A few days late. Heather was a Lady bug and Puppa was a bumble bee. It was a good time for Heather but Detroit was freaked out by all the costumes.
I have had a good week of volunteering. I had an event at Stonehill in Easton where I spoke to a class of women ( I don't know where the men are for my presentations) about my experiences with organ donation and transplantation. I have gotten emails from a few that reported they talked to their families and one even went to go get a new license. Then Friday I spoke at the Jordan Hospital to a group of nurses. Some of which had heard my story or had treated me in the Emergency Department. They were quite surprised I was alive and doing so well. My mom went and told me how proud she was of my efforts. She had never really seen me in action. Apparently she saw some nurses passing around the tissues. You know its successful if some tears are shed. I haven't exactly met my goal of 100 new donors, but I don't think success is necessarily in the numbers. After all, one donor can save up to fifty lives. For more on my project visit: myspace.com/don8life.
Last week I decided that I was going to move out from Kevin's house into one of the family apartments in the "compound." SO back to Liberty Street I go. We are not breaking up, but Kevin clearly has issues with my illness and coping with the idea of a transplant. He told me that he can barely take care of himself and Heather, nevermind act as my caregiver. At least he was honest and took the opportunity to tell me before there was some commitment to be broken. I decided that I really needed a space of my own to wait and to heal. A place that is stress and anxiety free because God knows the anxiety runs high waiting for that call.
More later...

Friday, October 27, 2006

Your Life Path Number is 11
Your purpose in life is to inspire others
Your amazing energy draws people to you, and you give them great insight in return.You hold a great amount of power over others, without even trying.You have the makings of an inventor, artist, religious leader, or prophet.
In love, you are sensitive and passionate. You connect with your partner on a very deep level.
You have great abilities, but you are often way too critical of yourself.You don't fit in - and instead of celebrating your differences, you dwell on them.You have high expectations of yourself. But sometimes you set them too high and don't achieve anything.
What Is Your Life Path Number?
You've Experienced 76% of Life
You have all of the life experience that most adults will ever get.And unless you're already in your 40s, you're probably wise beyond your years.
How Much Life Experience Do You Have?

Tuesday, October 17, 2006

As much as I try to sound rosey, this surgery is just like having the kidney surgery all over again. The need for a pancreas is more evident than ever since my diabetes blood sugar measures are off the chart no matter how many injections I take. I still have yuck remanents so I have been up coughing and spewing sputum all over the balance. All the midnight sit ups have made the pain of my 14 staples 10 times worse. (It is 14, not 20...I counted!) I'll find out on Friday exactly when I will be healed and ready for status 7 active.
I am at Ministorage today doing homework, but of course I got sidetracked. Actually not really because I am getting data for my Master's project. I looked on OPTN.org, the Organ Procurement Transplant Network and discovered that on the Brigham and Women's Hospital Pancreas Candidates, there are currently 5. All are in a holding pattern. No surgeries have been completed according to current data. 3 of the candidates are men; two women. 2 have type A blood. 1 is between 16 and 34 years of age (guess who?) SO chances are- as soon as the hernia staples come out, a pancreas will be going in soon after.
I continue volunteering with NEOB. I spoke at their new staff orientation and previewed my movie/slide show. I am trying to tailor it to a 16 to 21 age target population. I NEED AN APPROPRIATE SONG...Please help- I am way too old and "I'm Alive" by Celine Dion is okay for adults but for a highschool sophomore- DOUBTFUL. Okay, customer.